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Scott Seidman October 12th, 2004 05:46 PM

supeman was my favorite -
 
Peter Charles wrote in
:

I sincerely respect anyone who rejects the benefits or refuses to take
part in research that they feel is morally and religiously repugnant.
That is admirable. But they have no right to impose that view on
others who do not share it. Again, that is religious tyranny. Do you
exist in a democracy or a theocracy? If a majority, who hold similar
religious views, impose laws on the minority to bring that minority
into religious conformity, then that country has transformed itself
into a theocracy. That is why most Western democracies do their
utmost to separate church and state. Millions have died over the
centuries because of this bigotry. It should never again be allowed
to see the light of day.


Again, let's keep remembering that I am clearly pro stem-cell research,
and playing the devil's advocate here to point out that there are moral
issues that can be recognized on both sides of this argument.

When the US government chooses not to fund stem cell research on new cell
lines, one can hardly call that religious tyranny. In fact, the
government has not made such research illegal, and there's nothing in the
constitution or US code that says the government is required to fund
research at all. We're not talking about law here, only policy. The
next logical step is that the government can continue to fund valuable
research so long as the NIH gets funded-- this isn't a mandated program
like Social Security, where Congress will work hard to make sure the
funds are in place, its a budgetary line item whose size gets argued
about constantly (at least based on the number of letters scientific
organizations ask me to write to try to get larger appropriations). You
**** off enough voters, science-freindly Senators get the boot,
appropriations go down. This happens regardless of the motives of the
constituency, religious or secular. There are benefits to the NIH
staying off the radar screen of the Kooks. It may be wrong, but its the
way things work. We don't live in a theocracy, but the masses do have
their influence, and some of the masses are religious. Certainly,
Institutional Review Boards that put a seal of approval on projects
involving human studies are required by law to have community
representation, and sometimes have clergy representation. Picture going
in front of such a review board and explaining that their morals, formed
in part because of their religious doctrines, have no place in a
scientific discussion. Lead balloon city.

There are slippery slopes on both sides-- the whole right to life thing
is dangerous, IMO, but I also wouldn't want to see fetus farms for
harvesting stem cells, or fetuses conceived for this specific purpose.
It's ethical discussions like this that keep us nicely in the center--
sometimes we momentarily teeter too far in one direction, but usually we
find our way back. Debates like this are best served by trying your best
to understand the counter position. Dismissing that position as
untenable might get your views across quickly and accurately, but rarely
advance the debate.

I can tell you that the instructor of our Tissue Engineering course,
clearly on the pro side, makes his best case in front of the students,
but also discusses the points on the con side. He then polls the
students--intelligent kids coming from a variety of backgrounds, but
mostly from the northeast- and every few years the con wins the count,
and every year they're well represented. These are fairly intelligent
kids, and dismissing their position as untenable would seem shortsighted.

Here's another example that I've pondered over myself. Jews tend to
place a high regard on sending a dead body back to its maker in the same
condition it was given to them. That's why, after a suicide bombing,
some of the first on the scene are canvassing the sites for pieces of
flesh, to make sure they're buried with the right body, or waiting for
the survivors in the ground when they get buried. In any case, because
of the way the dead are treated, orthodox Jews are not organ donors.
Now, people die, and fairly often, waiting on the list for a transplant
donor. Is the witholding of organs by these people "religious tyranny"?
Well, others are certainly free to donate organs, nobody is stopping
them. Nobody is trying to put an end to transplantation either. Yet,
the fact remains, for every orthodox Jew that would make a good organ
donor that dies, that's a few organs that won't ever make it to the
transplant list.

Medical ethics can be quite debatable, and they also change over time.
Many hospitals, at least the smart ones, keep an ethicist on staff to
help committees wrestle over these issues and to make sure all sides are
covered.

Scott

Scott

riverman October 12th, 2004 06:29 PM

supeman was my favorite -
 

"Scott Seidman" wrote in message
. 1.4...
Peter Charles wrote in

Here's another example that I've pondered over myself. Jews tend to
place a high regard on sending a dead body back to its maker in the same
condition it was given to them. That's why, after a suicide bombing,
some of the first on the scene are canvassing the sites for pieces of
flesh, to make sure they're buried with the right body, or waiting for
the survivors in the ground when they get buried. In any case, because
of the way the dead are treated, orthodox Jews are not organ donors.
Now, people die, and fairly often, waiting on the list for a transplant
donor. Is the witholding of organs by these people "religious tyranny"?
Well, others are certainly free to donate organs, nobody is stopping
them. Nobody is trying to put an end to transplantation either. Yet,
the fact remains, for every orthodox Jew that would make a good organ
donor that dies, that's a few organs that won't ever make it to the
transplant list.


This is an apples and oranges example compared to the stem-cell research
topic. While Jews are not organ donors, they do not active fight others from
being organ donors, or try to quench research into how to make organs more
acceptable to the recipient. They let others do research, and the public
benefits from the research. I can support someone who does not go into stem
cell research because they feel its religiously immoral, but not people who
block the benefits of others doing that research.

I agree that its hypocritical for someone who actively opposed stem cell
research to express their sympathies for the death of Chris Reeve (not for
them to say what a valiant fighter or true hero he was, that's different).
But to have actively resisted the research that might have cured him, and
then bemoan the sadness of his ailment is like seeing someone fall
overboard, pulling the safety ring away from them each time they reached for
it until they drown, then claiming it is so sad that they drowned.

BTW: I heard that Bush waivered on his anti-stem cell stance when it came
out that Ronnie might benefit from it (or else right after he died), but he
couldn't just open the floodgates because of the religious right. So he
found the middle ground.

--riverman




Scott Seidman October 12th, 2004 07:27 PM

supeman was my favorite -
 
"riverman" wrote in
:

They let others do research, and the public
benefits from the research. I can support someone who does not go into
stem cell research because they feel its religiously immoral, but not
people who block the benefits of others doing that research.


The government doesn't block anyone from doing research on or developing
any stem cell line they want-- they just won't pay for it. Any researcher,
even those who get NIH money, can do this, so long as they can demonstrate
entirely different funding lines for the research.

Again, I think that the current policy is not as consistent as refusing to
pay for line development, but allowing researchers to use all lines
developed through other means. My own values are that I believe the
government should end these restrictions, but I understand why some people
would not want government money going in to this research. I also feel the
current policy is the height of wishy-washyness, and should satisfy noone

Scott

bones October 13th, 2004 04:13 AM

supeman was my favorite -
 
On Tue, 12 Oct 2004 20:09:30 -0400, Peter Charles
wrote:

We currently use cadaver tissue in medical research and have done so
for a long time. It is ethically, morally, and for many religions,
spiritually, plus legally permissable. Aborted fetus tissue is also
cadaver tissue -- why isn't it acceptable?


If the fetus tissue is cadvar tissue, then the aborted fetus, by
defintion, is an aborted human being.

I'm on the fence in some ways mainly because I do not know as much as
I should or could about the issue(s).. I have this sinking feeling
that many are being led to believe that this line of reseach, good or
bad, is leading to rapid profound cures that are just within our grasp
if only we had more money
From all that I have read I just don't think that this is the case and
there seems to be a bit of dishonsesty involved.

riverman October 13th, 2004 09:13 AM

supeman was my favorite -
 

"Jonathan Cook" wrote in message
...
riverman wrote:

I agree that its hypocritical for someone who actively opposed stem cell
research to express their sympathies for the death of Chris Reeve (not
for


Hypocritical to express sympathy? You've got to be kidding...


Not at all. Read my entire statement: "I agree that its hypocritical for
someone who actively opposed stem cell
research to express their sympathies for the death of Chris Reeve (not for
them to say what a valiant fighter or true hero he was, that's different)."

Expressing sympathies FOR his death is crying crocodile tears. To tone it
down, I will add a caveat: expressing sympathies for his death, while
contribiting to the lack of medical reief for spinal cord injuries, is
hypocritical. Better?


Yeah, so it's just as hypocritical to express sympathy while
opposing human cloning, since that research is just as likely,
maybe even more so, to produce a "cure".


I wouldn't know: I support both stem cell research and cloning, and I
believe our insecurities about science are keeping us away from important
knowledge that could have benefitted people like Reeve.

Most of us view human cloning as producing people, real living people
identical to ourselves, with personalities, who look like us and are somehow
related to us, but who are robbed of their individuality because they are
produced outside the lottery of life. However, the Brits are already being
granted permits to clone human embryos to produce embryonic stem cells; they
produce a microscopic mass of cells with identical DNA. No organs, no higher
functions, not much different than what you scrape off your face every
morning when you shave. Calling that mass of cells 'a human life' because of
its potential to grow into something with personality is like calling the
grin you give the waitress 'a human life.' Having empathy for and giving
legal rights to a microscopic cluster of cells is bizarre. Hell, you kill
that many human cells each time you drink a few glasses of single malt.

So, yeah, anyone who opposes cloning is not far out of the camp of the
people who oppose embryonic stem cell research. I ask them: should we
extend our restrictions on medical research to transplanting organs, too?
Its only a small step from taking organs from someone who has died, to
someone who is about to die, to someone whose organs would be better off
"if" they were allowed to die.......to killing people for their organs, to
raising people to produce organs. And you know, there are people in that
camp also!

--riverman



rw October 13th, 2004 12:08 PM

supeman was my favorite -
 
Jonathan Cook wrote:
riverman wrote:


I agree that its hypocritical for someone who actively opposed stem cell
research to express their sympathies for the death of Chris Reeve (not for



Hypocritical to express sympathy? You've got to be kidding...


What is hypocritical is to oppose stem cell research on the grounds that
the stem cells come from "aborted" fetuses (which isn't true), while at
the same time not opposing fertility treatments, which is the actual
source of stem cells (from excess blastocysts that would be discarded
anyway).

--
Cut "to the chase" for my email address.

rw October 13th, 2004 12:17 PM

supeman was my favorite -
 
bones wrote:
On Tue, 12 Oct 2004 20:09:30 -0400, Peter Charles
wrote:


We currently use cadaver tissue in medical research and have done so
for a long time. It is ethically, morally, and for many religions,
spiritually, plus legally permissable. Aborted fetus tissue is also
cadaver tissue -- why isn't it acceptable?



If the fetus tissue is cadvar tissue, then the aborted fetus, by
defintion, is an aborted human being.

I'm on the fence in some ways mainly because I do not know as much as
I should or could about the issue(s).. I have this sinking feeling
that many are being led to believe that this line of reseach, good or
bad, is leading to rapid profound cures that are just within our grasp
if only we had more money
From all that I have read I just don't think that this is the case and
there seems to be a bit of dishonsesty involved.


So just what do you think is the motivation behind the people who are
misleading the public? Is it a plot to cause more abortions? Sheesh.

BTW, stem cells do not come from aborted fetuses. The least promising
ones (for research) come from adults, somewhat more promising ones come
from umbilical cords, and the most promising ones (and the ones that are
causing the controversy) come from excess blastocysts which are produced
in fertility treatments, and that would be otherwise discarded.

In fact, if you actually LISTEN to the responsible and knowledgeable
people who call for more stem cell research, they state up front that
treatments are years away. You recently had successful treatment for
cancer, which was wonderful. You looked GREAT at the Western Clave,
Harry. What if, say 30 years ago, we decided not to spend money for
cancer research because treatments were many years away?

--
Cut "to the chase" for my email address.

[email protected] October 13th, 2004 12:26 PM

supeman was my favorite -
 
On 12 Oct 2004 18:27:35 GMT, Scott Seidman
wrote:

"riverman" wrote in
:

They let others do research, and the public
benefits from the research. I can support someone who does not go into
stem cell research because they feel its religiously immoral, but not
people who block the benefits of others doing that research.


The government doesn't block anyone from doing research on or developing
any stem cell line they want-- they just won't pay for it. Any researcher,
even those who get NIH money, can do this, so long as they can demonstrate
entirely different funding lines for the research.


And stem-cell research is only one of the things the Fed, States, etc.,
refuse to pay for, regardless of who is President. Even, for example,
travel. Ever seen travel expense guidelines? And IMO, this is like
voluntary abortion (I choose to differentiate between "voluntary" and
"medically-necessary"): until it can be shown that "life" begins at
conception, it isn't a legal issue in the purview of the Fed, and it
ought to stay out of such areas - COMPLETELY out of them - no banning,
no funding, no pro or con opinionating, etc. And the argument that it
REALLY important or _might_ lead to a/the miracle cure for whatever is
not material as someone would say the same about _any_ research in which
they might have a vested interest.

TC,
R


[email protected] October 13th, 2004 12:26 PM

supeman was my favorite -
 
On 12 Oct 2004 18:27:35 GMT, Scott Seidman
wrote:

"riverman" wrote in
:

They let others do research, and the public
benefits from the research. I can support someone who does not go into
stem cell research because they feel its religiously immoral, but not
people who block the benefits of others doing that research.


The government doesn't block anyone from doing research on or developing
any stem cell line they want-- they just won't pay for it. Any researcher,
even those who get NIH money, can do this, so long as they can demonstrate
entirely different funding lines for the research.


And stem-cell research is only one of the things the Fed, States, etc.,
refuse to pay for, regardless of who is President. Even, for example,
travel. Ever seen travel expense guidelines? And IMO, this is like
voluntary abortion (I choose to differentiate between "voluntary" and
"medically-necessary"): until it can be shown that "life" begins at
conception, it isn't a legal issue in the purview of the Fed, and it
ought to stay out of such areas - COMPLETELY out of them - no banning,
no funding, no pro or con opinionating, etc. And the argument that it
REALLY important or _might_ lead to a/the miracle cure for whatever is
not material as someone would say the same about _any_ research in which
they might have a vested interest.

TC,
R


George Adams October 13th, 2004 01:45 PM

supeman was my favorite -
 
From: Peter Charles

First off, I'm following media reports on stem cell research that
suggests, directly or implied, that opposition to stem cell research
is rooted in the anti-abortion crusade of the religious right.


I
realize there are other sects and religions opposed to abortion but
the political power rests with evangelic wing of the Republican Party
and that is who I am addressing. If I have that wrong, please correct
me.


I don't believe you're wrong.

That said, since the administration refuses to fund new lines of stem cells,
(they do fund research on 70+ existing lines), why don't the major drug
companies like Phizer, etc, step up to the plate and put the r&d money they get
from the inflated prices they charge for drugs, and provide the funding for new
lines and further research?

Also, stem cells are likely not the holy grail of medicine that many people
seem to think they are. For instance, consider Ronald Reagan. After his death,
there was a great hue and cry regarding how stem cell research would lead to a
cure for Alzhiemer's Disease. However, according to the top Alzhiemer doctors,
the nature of the disease makes it a poor candidate for a stem cell cure, and
this was widely broadcast on the major U.S. networks, hardly bastions of the
religious right.


George Adams

"All good fishermen stay young until they die, for fishing is the only dream of
youth that doth not grow stale with age."
---- J.W Muller


George Adams October 13th, 2004 01:45 PM

supeman was my favorite -
 
From: Peter Charles

First off, I'm following media reports on stem cell research that
suggests, directly or implied, that opposition to stem cell research
is rooted in the anti-abortion crusade of the religious right.


I
realize there are other sects and religions opposed to abortion but
the political power rests with evangelic wing of the Republican Party
and that is who I am addressing. If I have that wrong, please correct
me.


I don't believe you're wrong.

That said, since the administration refuses to fund new lines of stem cells,
(they do fund research on 70+ existing lines), why don't the major drug
companies like Phizer, etc, step up to the plate and put the r&d money they get
from the inflated prices they charge for drugs, and provide the funding for new
lines and further research?

Also, stem cells are likely not the holy grail of medicine that many people
seem to think they are. For instance, consider Ronald Reagan. After his death,
there was a great hue and cry regarding how stem cell research would lead to a
cure for Alzhiemer's Disease. However, according to the top Alzhiemer doctors,
the nature of the disease makes it a poor candidate for a stem cell cure, and
this was widely broadcast on the major U.S. networks, hardly bastions of the
religious right.


George Adams

"All good fishermen stay young until they die, for fishing is the only dream of
youth that doth not grow stale with age."
---- J.W Muller


Scott Seidman October 13th, 2004 02:03 PM

supeman was my favorite -
 
ojunk (George Adams) wrote in
:

Also, stem cells are likely not the holy grail of medicine that many
people seem to think they are. For instance, consider Ronald Reagan.
After his death, there was a great hue and cry regarding how stem cell
research would lead to a cure for Alzhiemer's Disease. However,
according to the top Alzhiemer doctors, the nature of the disease
makes it a poor candidate for a stem cell cure, and this was widely
broadcast on the major U.S. networks, hardly bastions of the religious
right.


George Adams



Alzheimers might not be the best target, but it is a reasonable target.
Any place central nervous tissue could use replacing, stem cell treatments
might apply. We can keep going--Parkinson's, spinal cord injury, diabetes
(well, that's not nervous tissue, but there's still applications),
retinitis pigmentosa, ....

You also need these cell lines to gain an understanding of how an
undifferentiated cell becomes differentiated. That simple understanding
will open up a whole world of treatments.

Scott

bones October 13th, 2004 02:46 PM

supeman was my favorite -
 
On Wed, 13 Oct 2004 05:17:46 -0600, rw
wrote:

So just what do you think is the motivation behind the people who are
misleading the public? Is it a plot to cause more abortions? Sheesh.


Ask Senator Edwards....

BTW, stem cells do not come from aborted fetuses.

Well there seems to be a difference of opinon here, Peter says this is
a source.

The least promising
ones (for research) come from adults, somewhat more promising ones come
from umbilical cords, and the most promising ones (and the ones that are
causing the controversy) come from excess blastocysts which are produced
in fertility treatments, and that would be otherwise discarded.


I admit to not being up to speed and this thread has presented at
least three explanations of the cell's themselves. I read that a
blastocyst is a fertilized ovum ....so it becomes an issue ones
definitions and here I do not have a clear view.

In fact, if you actually LISTEN to the responsible and knowledgeable
people who call for more stem cell research, they state up front that
treatments are years away. You recently had successful treatment for
cancer, which was wonderful. You looked GREAT at the Western Clave,
Harry. What if, say 30 years ago, we decided not to spend money for
cancer research because treatments were many years away?


speaking as one who has been up close and personal to the terror of
these maladies I am for just about any type of research and stem cell
is included.
I just have some issues about the source and how they are gotten.
This is not to say I'm against it, I just think we should be careful.
But , I'm learning more and more and unlike some here I'm at least
willing it change.


-



Frank Reid October 13th, 2004 03:02 PM

supeman was my favorite -
 
Alzheimers might not be the best target, but it is a reasonable target.
Any place central nervous tissue could use replacing, stem cell treatments
might apply. We can keep going--Parkinson's, spinal cord injury, diabetes
(well, that's not nervous tissue, but there's still applications),
retinitis pigmentosa, ....

You also need these cell lines to gain an understanding of how an
undifferentiated cell becomes differentiated. That simple understanding
will open up a whole world of treatments.


Gene therapy. There are a lot of folks who's systems are compromised,
either from birth or afterwards that would benefit from gene therapy.
My daughter has what could be called "genetic scurvy." The only
treatment for this would be gene therapy. Without the stem cell
research, her chances of a long life are very slim. This problem,
Ehlers-Danlos syndrome (EDS) is one of a large group of problems that
are termed "orphan diseases." They are orphaned, because the
researchers put their time in for the most bang for the buck, i.e.
cancer, HIV... One breakthrough in say, collagen gene therapy, could
save thousands with EDS, Marphans, etc.
When a politician makes life or death policy decisions for your family
(specifically death) based upon getting a strong voter turnout in his
favor from some factions, he/she doesn't get my vote.

--
Frank Reid
Reverse Email to reply


Frank Reid October 13th, 2004 03:02 PM

supeman was my favorite -
 
Alzheimers might not be the best target, but it is a reasonable target.
Any place central nervous tissue could use replacing, stem cell treatments
might apply. We can keep going--Parkinson's, spinal cord injury, diabetes
(well, that's not nervous tissue, but there's still applications),
retinitis pigmentosa, ....

You also need these cell lines to gain an understanding of how an
undifferentiated cell becomes differentiated. That simple understanding
will open up a whole world of treatments.


Gene therapy. There are a lot of folks who's systems are compromised,
either from birth or afterwards that would benefit from gene therapy.
My daughter has what could be called "genetic scurvy." The only
treatment for this would be gene therapy. Without the stem cell
research, her chances of a long life are very slim. This problem,
Ehlers-Danlos syndrome (EDS) is one of a large group of problems that
are termed "orphan diseases." They are orphaned, because the
researchers put their time in for the most bang for the buck, i.e.
cancer, HIV... One breakthrough in say, collagen gene therapy, could
save thousands with EDS, Marphans, etc.
When a politician makes life or death policy decisions for your family
(specifically death) based upon getting a strong voter turnout in his
favor from some factions, he/she doesn't get my vote.

--
Frank Reid
Reverse Email to reply


Frank Reid October 13th, 2004 03:02 PM

supeman was my favorite -
 
Alzheimers might not be the best target, but it is a reasonable target.
Any place central nervous tissue could use replacing, stem cell treatments
might apply. We can keep going--Parkinson's, spinal cord injury, diabetes
(well, that's not nervous tissue, but there's still applications),
retinitis pigmentosa, ....

You also need these cell lines to gain an understanding of how an
undifferentiated cell becomes differentiated. That simple understanding
will open up a whole world of treatments.


Gene therapy. There are a lot of folks who's systems are compromised,
either from birth or afterwards that would benefit from gene therapy.
My daughter has what could be called "genetic scurvy." The only
treatment for this would be gene therapy. Without the stem cell
research, her chances of a long life are very slim. This problem,
Ehlers-Danlos syndrome (EDS) is one of a large group of problems that
are termed "orphan diseases." They are orphaned, because the
researchers put their time in for the most bang for the buck, i.e.
cancer, HIV... One breakthrough in say, collagen gene therapy, could
save thousands with EDS, Marphans, etc.
When a politician makes life or death policy decisions for your family
(specifically death) based upon getting a strong voter turnout in his
favor from some factions, he/she doesn't get my vote.

--
Frank Reid
Reverse Email to reply


riverman October 13th, 2004 03:24 PM

supeman was my favorite -
 

"Frank Reid" wrote in message
...
My daughter has what could be called "genetic scurvy." The only treatment
for this would be gene therapy. Without the stem cell research, her
chances of a long life are very slim. This problem, Ehlers-Danlos
syndrome (EDS) is one of a large group of problems that are termed "orphan
diseases."


Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. What an incredibly sweet girl, nicest sense of
humor and loveliest soul I ever met. But she was wrapped in tissue paper and
strung together with thread. She would dislocate her shoulder and/or elbow
just carrying books, and her wrist would go out if she held hands with
someone and they weren't careful. Even the slightest bump of her shin would
open up the most gawdawful gash. She couldn't even wear socks with tight
bands. I had to treat her several times in the course of the summer: she
would wig out at the injury, hold the edges shut until I came, catch her
breath and calm down, and then we'd go to work taping her back shut again.
She had scars like you wouldn't believe (well, YOU might) all over her legs
and arms.

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman



riverman October 13th, 2004 03:24 PM

supeman was my favorite -
 

"Frank Reid" wrote in message
...
My daughter has what could be called "genetic scurvy." The only treatment
for this would be gene therapy. Without the stem cell research, her
chances of a long life are very slim. This problem, Ehlers-Danlos
syndrome (EDS) is one of a large group of problems that are termed "orphan
diseases."


Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. What an incredibly sweet girl, nicest sense of
humor and loveliest soul I ever met. But she was wrapped in tissue paper and
strung together with thread. She would dislocate her shoulder and/or elbow
just carrying books, and her wrist would go out if she held hands with
someone and they weren't careful. Even the slightest bump of her shin would
open up the most gawdawful gash. She couldn't even wear socks with tight
bands. I had to treat her several times in the course of the summer: she
would wig out at the injury, hold the edges shut until I came, catch her
breath and calm down, and then we'd go to work taping her back shut again.
She had scars like you wouldn't believe (well, YOU might) all over her legs
and arms.

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman



Frank Reid October 13th, 2004 03:27 PM

supeman was my favorite -
 
Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman


Yes, type 4, the same as my daughter. It killed her mother. Type IV is
the deadliest form. Most don't live past their twenties. Its also very
rare in females as it is male dominant (only 1 in 10 are female).
--
Frank Reid
Reverse Email to reply


Tim J. October 13th, 2004 03:35 PM

supeman was my favorite -
 
Frank Reid wrote:
Your daughter has EDS? I once had a student in a summer program who
had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working
with her really enlightened my life. I don't think she is still with
us, which is sad.


Yes, type 4, the same as my daughter.


Wow, Frank. The things you learn on Usenet.

Watching a situation such as this as the "protector parent" is the
worst. My thoughts and prayers are with you and your family. I hope a
cure is in her future.
--
TL,
Tim
------------------------
http://css.sbcma.com/timj



Tim J. October 13th, 2004 03:35 PM

supeman was my favorite -
 
Frank Reid wrote:
Your daughter has EDS? I once had a student in a summer program who
had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working
with her really enlightened my life. I don't think she is still with
us, which is sad.


Yes, type 4, the same as my daughter.


Wow, Frank. The things you learn on Usenet.

Watching a situation such as this as the "protector parent" is the
worst. My thoughts and prayers are with you and your family. I hope a
cure is in her future.
--
TL,
Tim
------------------------
http://css.sbcma.com/timj



Frank Reid October 13th, 2004 03:42 PM

supeman was my favorite -
 
Your daughter has EDS? I once had a student in a summer program who
had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working
with her really enlightened my life. I don't think she is still with
us, which is sad.


Yes, type 4, the same as my daughter.



Wow, Frank. The things you learn on Usenet.

Watching a situation such as this as the "protector parent" is the
worst. My thoughts and prayers are with you and your family. I hope a
cure is in her future.


Anyone wishing to know more, please go to http://www.ehlers-danlos.org/
They're trying to find a cure.

--
Frank Reid
Reverse Email to reply


Bones October 13th, 2004 03:44 PM

supeman was my favorite -
 
would you have an issue if this read:

If the fetus tissue is cadvar tissue, then the cloned fetus, by
defintion, is an cloned human being.




On Wed, 13 Oct 2004 07:24:19 -0400, Peter Charles
wrote:


If the fetus tissue is cadvar tissue, then the aborted fetus, by
defintion, is an aborted human being.


I don't have a problem with that definition.



Frank Reid October 13th, 2004 03:48 PM

supeman was my favorite -
 
Anyone wishing to know more, please go to http://www.ehlers-danlos.org/
They're trying to find a cure.


Also, http://www.ednf.org/ Dr. Byers (in the grants section), the one
at UW, diagnosed my daughter over 20 years ago. At the time, he was the
only person in the world doing research on EDS. At the time, there were
less than 50 recognized cases in the US.

--
Frank Reid
Reverse Email to reply


[email protected] October 13th, 2004 04:27 PM

supeman was my favorite -
 
On Wed, 13 Oct 2004 13:46:32 GMT, bones wrote:

On Wed, 13 Oct 2004 05:17:46 -0600, rw
wrote:

So just what do you think is the motivation behind the people who are
misleading the public? Is it a plot to cause more abortions? Sheesh.


Ask Senator Edwards....

BTW, stem cells do not come from aborted fetuses.

Well there seems to be a difference of opinon here, Peter says this is
a source.

I thought that the source didn't matter, as long the stem cells were
"harvested" quickly after the embryo formation - a few days? If that is
the case, it would seem that "normal" abortions wouldn't be a very good
source. But, I guess, it _could_ encourage "embryo factory" abortions,
but that doesn't seem to be a big potential problem, IMO.

That aside, I thought the main objection to embryonic stem cells was not
related to abortions, but the fact that it HAD to be a planned thing -
create the embryo knowing you're going to destroy it - that destroyed
the embryo, and in doing so, a (potential) life. Hence, at least for
me, there is no hypocrisy in allowing research on current stocks of
already-not-viable embryos. And if anyone cares about Bush's address on
it back in 2001, here is the text:

http://www.whitehouse.gov/news/relea...0010809-2.html

TC,
R

rw October 13th, 2004 05:14 PM

supeman was my favorite -
 
wrote:

That aside, I thought the main objection to embryonic stem cells was not
related to abortions, but the fact that it HAD to be a planned thing -
create the embryo knowing you're going to destroy it - that destroyed
the embryo, and in doing so, a (potential) life.


The "planning" is done by couples being treated for infertility. Women
are treated with hormones to induce the production of eggs, which are
then fertilized in vitro and grown into blastocysts, some of which are
implanted in either the "mother's" uterus or the uterus of a surrogate.
The excess blastocysts are, as of now, discarded or kept frozen
indefinitely.

Hence, at least for
me, there is no hypocrisy in allowing research on current stocks of
already-not-viable embryos.


The currently available cell lines are corrupted with mouse cells, among
other things.

--
Cut "to the chase" for my email address.

[email protected] October 13th, 2004 05:36 PM

supeman was my favorite -
 
On Wed, 13 Oct 2004 10:14:11 -0600, rw
wrote:

wrote:

That aside, I thought the main objection to embryonic stem cells was not
related to abortions, but the fact that it HAD to be a planned thing -
create the embryo knowing you're going to destroy it - that destroyed
the embryo, and in doing so, a (potential) life.


The "planning" is done by couples being treated for infertility. Women
are treated with hormones to induce the production of eggs, which are
then fertilized in vitro and grown into blastocysts, some of which are
implanted in either the "mother's" uterus or the uterus of a surrogate.
The excess blastocysts are, as of now, discarded or kept frozen
indefinitely.


So it would seem that even allowing that these would be the only ones
used, the fact remains that these were created for the sole purpose of a
couple having a baby, and therefore, a (potential) life, and if they are
still viable, but unwanted by the couple, they are, at the end of the
debate, still viable. It would seem to me that using these are even
more arguable as they were created for the sole purpose of becoming a
baby/life/human/whatever one chooses to term it.

While I understand (and for speaking only for me, generally agree with)
the argument allowing for the use of the excess, I also can see the
argument_S_ against. While I respect the subjective
"religious/moral/ethics" argument against it, I think the argument
against based on it being a slippery slope is not only rational and
objective, but more importantly, a real danger. In the end, knowing
what is known today, I think it is an area with no clear answers, and as
such, there is no "right" or "wrong," only positions and to belittle
another's honest position is foolish.

Hence, at least for
me, there is no hypocrisy in allowing research on current stocks of
already-not-viable embryos.


The currently available cell lines are corrupted with mouse cells, among
other things.


I thought that was only the ones that the Fed is currently providing
funds for research in/on. It seems the discussion has gotten away from
the real question: "Should the Fed fund it?" Banning it is not at
current issue, AFAIK.

TC,
R


[email protected] October 13th, 2004 05:36 PM

supeman was my favorite -
 
On Wed, 13 Oct 2004 10:14:11 -0600, rw
wrote:

wrote:

That aside, I thought the main objection to embryonic stem cells was not
related to abortions, but the fact that it HAD to be a planned thing -
create the embryo knowing you're going to destroy it - that destroyed
the embryo, and in doing so, a (potential) life.


The "planning" is done by couples being treated for infertility. Women
are treated with hormones to induce the production of eggs, which are
then fertilized in vitro and grown into blastocysts, some of which are
implanted in either the "mother's" uterus or the uterus of a surrogate.
The excess blastocysts are, as of now, discarded or kept frozen
indefinitely.


So it would seem that even allowing that these would be the only ones
used, the fact remains that these were created for the sole purpose of a
couple having a baby, and therefore, a (potential) life, and if they are
still viable, but unwanted by the couple, they are, at the end of the
debate, still viable. It would seem to me that using these are even
more arguable as they were created for the sole purpose of becoming a
baby/life/human/whatever one chooses to term it.

While I understand (and for speaking only for me, generally agree with)
the argument allowing for the use of the excess, I also can see the
argument_S_ against. While I respect the subjective
"religious/moral/ethics" argument against it, I think the argument
against based on it being a slippery slope is not only rational and
objective, but more importantly, a real danger. In the end, knowing
what is known today, I think it is an area with no clear answers, and as
such, there is no "right" or "wrong," only positions and to belittle
another's honest position is foolish.

Hence, at least for
me, there is no hypocrisy in allowing research on current stocks of
already-not-viable embryos.


The currently available cell lines are corrupted with mouse cells, among
other things.


I thought that was only the ones that the Fed is currently providing
funds for research in/on. It seems the discussion has gotten away from
the real question: "Should the Fed fund it?" Banning it is not at
current issue, AFAIK.

TC,
R


George Adams October 13th, 2004 05:39 PM

supeman was my favorite -
 
From: Scott Seidman

Alzheimers might not be the best target, but it is a reasonable target.


Apparently you know more than the doctors. According to the one I saw
interviewed by Tom Brokaw on NBC, Alzhiemers would not benefit in any way from
stem cell therapy. The other conditions you mention, afaik, are viable
candidates for stem cell therapy.

FWIW, the whole stem cell issue is one of the areas where I disagree with Bush.
In the absence of federal funding, however, I still don't see why the drug
companies won't kick in some of their "r&d" money to fund the program.

There is a misconception that the current administration has banned stem cell
research. This is not true...they have simply refused to fund new research.


George Adams

"All good fishermen stay young until they die, for fishing is the only dream of
youth that doth not grow stale with age."
---- J.W Muller


George Adams October 13th, 2004 05:39 PM

supeman was my favorite -
 
From: Scott Seidman

Alzheimers might not be the best target, but it is a reasonable target.


Apparently you know more than the doctors. According to the one I saw
interviewed by Tom Brokaw on NBC, Alzhiemers would not benefit in any way from
stem cell therapy. The other conditions you mention, afaik, are viable
candidates for stem cell therapy.

FWIW, the whole stem cell issue is one of the areas where I disagree with Bush.
In the absence of federal funding, however, I still don't see why the drug
companies won't kick in some of their "r&d" money to fund the program.

There is a misconception that the current administration has banned stem cell
research. This is not true...they have simply refused to fund new research.


George Adams

"All good fishermen stay young until they die, for fishing is the only dream of
youth that doth not grow stale with age."
---- J.W Muller


George Adams October 13th, 2004 05:48 PM

supeman was my favorite -
 
From: Frank Reid

Gene therapy. There are a lot of folks who's systems are compromised,
either from birth or afterwards that would benefit from gene therapy.
My daughter has what could be called "genetic scurvy." The only
treatment for this would be gene therapy.


Without the stem cell
research, her chances of a long life are very slim. This problem,
Ehlers-Danlos syndrome (EDS) is one of a large group of problems that
are termed "orphan diseases."


They are orphaned, because the
researchers put their time in for the most bang for the buck, i.e.
cancer, HIV... One breakthrough in say, collagen gene therapy, could
save thousands with EDS, Marphans, etc.


Wow. That's a tough one. My hunting partner and sometimes fishing buddy lost
two children to Gaucher's Disease, another 'orphan disease'. At the time they
died there was no cure, but several years later, a cure was found, but it cost
around $100,000 a year for several years, not an option for many people.

When a politician makes life or death policy decisions for your family
(specifically death) based upon getting a strong voter turnout in his
favor from some factions, he/she doesn't get my vote.


As I said before, I disagree with Bush on the stem cell issue, but even if the
research was funded, the work would still go toward the "bang for the buck"
diseases, the decision then being made by the executives in the drug companies.

I think Bush will lose more votes than he gains on this issue.

Hopefully a breakthrough will be made in time to help your daughter.


George Adams

"All good fishermen stay young until they die, for fishing is the only dream of
youth that doth not grow stale with age."
---- J.W Muller


Scott Seidman October 13th, 2004 06:37 PM

supeman was my favorite -
 
ojunk (George Adams) wrote in
:

From: Scott Seidman


Alzheimers might not be the best target, but it is a reasonable
target.


Apparently you know more than the doctors. According to the one I saw
interviewed by Tom Brokaw on NBC, Alzhiemers would not benefit in any
way from stem cell therapy. The other conditions you mention, afaik,
are viable candidates for stem cell therapy.


“There are many other avenues that are being pursued that are more likely
to be valuable than stem cell research,” said Dr. Rachelle Doody, a
professor of neurology and director of the Alzheimer’s Disease Center at
Baylor College of Medicine in Houston . “There may be something that
comes out of stem cell research that’s helpful in Alzheimer’s later, but
it’s not the primary focus.”

I think thats about in line with what I said--not the best target, but a
reasonable target. Anywhere there are dead or whacked out central
nervous system tissues that need replacement, stem cells are on the list.
It may not be my field directly, but enough of my colleagues here do
research along those lines, and I've been to enough Society for
Neuroscience annual meetings (Member since around 1989), and been to
enough talks on the subject, that I can largely hold my own. If you're
into politics, one of the Biggies in the Baylor leadership, Bobby
Alfred, gets enough research money for the whole university at levels
above the NIH, and wouldn't necessarily profit from ticking off the Bush
Administration.



FWIW, the whole stem cell issue is one of the areas where I disagree
with Bush. In the absence of federal funding, however, I still don't
see why the drug companies won't kick in some of their "r&d" money to
fund the program.

They like their cash, just like the insurance companies, and the oild
companies that are profiting handsomely off high oil prices.

There is a misconception that the current administration has banned
stem cell research. This is not true...they have simply refused to
fund new research.

Not quite. They've refused to fund new research involving stem cell
lines developed after their arbitrary decree. You can do new research on
old cell lines. There are a variety of reasons why that isn't even as
good as it sounds, the biggest one is that the lines the Administration
allows don't really exist or may not be viable. Lines also don't
necessarily live forever.


George Adams

"All good fishermen stay young until they die, for fishing is the only
dream of youth that doth not grow stale with age."
---- J.W
Muller


Scott


Scott Seidman October 13th, 2004 06:37 PM

supeman was my favorite -
 
ojunk (George Adams) wrote in
:

From: Scott Seidman


Alzheimers might not be the best target, but it is a reasonable
target.


Apparently you know more than the doctors. According to the one I saw
interviewed by Tom Brokaw on NBC, Alzhiemers would not benefit in any
way from stem cell therapy. The other conditions you mention, afaik,
are viable candidates for stem cell therapy.


“There are many other avenues that are being pursued that are more likely
to be valuable than stem cell research,” said Dr. Rachelle Doody, a
professor of neurology and director of the Alzheimer’s Disease Center at
Baylor College of Medicine in Houston . “There may be something that
comes out of stem cell research that’s helpful in Alzheimer’s later, but
it’s not the primary focus.”

I think thats about in line with what I said--not the best target, but a
reasonable target. Anywhere there are dead or whacked out central
nervous system tissues that need replacement, stem cells are on the list.
It may not be my field directly, but enough of my colleagues here do
research along those lines, and I've been to enough Society for
Neuroscience annual meetings (Member since around 1989), and been to
enough talks on the subject, that I can largely hold my own. If you're
into politics, one of the Biggies in the Baylor leadership, Bobby
Alfred, gets enough research money for the whole university at levels
above the NIH, and wouldn't necessarily profit from ticking off the Bush
Administration.



FWIW, the whole stem cell issue is one of the areas where I disagree
with Bush. In the absence of federal funding, however, I still don't
see why the drug companies won't kick in some of their "r&d" money to
fund the program.

They like their cash, just like the insurance companies, and the oild
companies that are profiting handsomely off high oil prices.

There is a misconception that the current administration has banned
stem cell research. This is not true...they have simply refused to
fund new research.

Not quite. They've refused to fund new research involving stem cell
lines developed after their arbitrary decree. You can do new research on
old cell lines. There are a variety of reasons why that isn't even as
good as it sounds, the biggest one is that the lines the Administration
allows don't really exist or may not be viable. Lines also don't
necessarily live forever.


George Adams

"All good fishermen stay young until they die, for fishing is the only
dream of youth that doth not grow stale with age."
---- J.W
Muller


Scott


October 13th, 2004 11:53 PM

supeman was my favorite -
 
In article , says...
Peter Charles wrote:
Finally, don't equate cloning and vivisection to stem cell research
using aborted fetus tissue, for that too, is over-the-top. What will
you equate it to next, live experimentation on humans?


Why is it over the top? At least give credit, as Scott does, to
the realities of the beliefs behind the opposition. If someone
believes abortion is really equivalent to murder, wouldn't you
_expect_ them to oppose using the left-over "cadavers" in
research? Rather than vilifying them for it, congratulate them
on being consistent.
(to others, I'm just following Peter's phrasing -- I do understand
that stem cell lines don't just (or maybe even at all) come from
aborted fetus tissue)


If stem cells do not come from "cadavers" why are people opposing
stem cell research?

If people opposed Reeve's life work because of a misconception then I
don't know what you want to call it, but it does seem "bad" for
those people to gush over Reeve now that he's died.
- Ken

Tom Littleton October 14th, 2004 12:18 AM

supeman was my favorite -
 
RDean notes:

It seems the discussion has gotten away from
the real question: "Should the Fed fund it?" Banning it is not at
current issue, AFAIK.


correct, you are. The crux of the problem is that, unless funded by the Feds,
most of these research projects will languish for want of substantial, and
relatively quick financial reward. Current academic research has been shaped,
in many cases, by the need for private sector funding, leading to the "orphan
disease" issue noted earlier. For us idealistic types who remember the nature
of scientific research before Reagan started the process of cutting back
Federal Funding, it can be sad having to read certain journal articles, and
wondering if the sponsorship colored the science.
Tom

Tom Littleton October 14th, 2004 12:18 AM

supeman was my favorite -
 
RDean notes:

It seems the discussion has gotten away from
the real question: "Should the Fed fund it?" Banning it is not at
current issue, AFAIK.


correct, you are. The crux of the problem is that, unless funded by the Feds,
most of these research projects will languish for want of substantial, and
relatively quick financial reward. Current academic research has been shaped,
in many cases, by the need for private sector funding, leading to the "orphan
disease" issue noted earlier. For us idealistic types who remember the nature
of scientific research before Reagan started the process of cutting back
Federal Funding, it can be sad having to read certain journal articles, and
wondering if the sponsorship colored the science.
Tom

Tom Littleton October 14th, 2004 12:18 AM

supeman was my favorite -
 
RDean notes:

It seems the discussion has gotten away from
the real question: "Should the Fed fund it?" Banning it is not at
current issue, AFAIK.


correct, you are. The crux of the problem is that, unless funded by the Feds,
most of these research projects will languish for want of substantial, and
relatively quick financial reward. Current academic research has been shaped,
in many cases, by the need for private sector funding, leading to the "orphan
disease" issue noted earlier. For us idealistic types who remember the nature
of scientific research before Reagan started the process of cutting back
Federal Funding, it can be sad having to read certain journal articles, and
wondering if the sponsorship colored the science.
Tom

Cyli October 14th, 2004 05:34 AM

supeman was my favorite -
 
On Wed, 13 Oct 2004 10:27:45 -0400, Frank Reid
wrote:

Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman


Yes, type 4, the same as my daughter. It killed her mother. Type IV is
the deadliest form. Most don't live past their twenties. Its also very
rare in females as it is male dominant (only 1 in 10 are female).



Sorry, Frank. It's hell enough having kids with ordinary problems or
problems that can at least be watched and pretty much taken care of by
present day doctors.

Cyli
r.bc: vixen. Minnow goddess. Speaker to squirrels.
Often taunted by trout.

http://www.visi.com/~cyli

Cyli October 14th, 2004 05:34 AM

supeman was my favorite -
 
On Wed, 13 Oct 2004 10:27:45 -0400, Frank Reid
wrote:

Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman


Yes, type 4, the same as my daughter. It killed her mother. Type IV is
the deadliest form. Most don't live past their twenties. Its also very
rare in females as it is male dominant (only 1 in 10 are female).



Sorry, Frank. It's hell enough having kids with ordinary problems or
problems that can at least be watched and pretty much taken care of by
present day doctors.

Cyli
r.bc: vixen. Minnow goddess. Speaker to squirrels.
Often taunted by trout.

http://www.visi.com/~cyli

Cyli October 14th, 2004 05:34 AM

supeman was my favorite -
 
On Wed, 13 Oct 2004 10:27:45 -0400, Frank Reid
wrote:

Your daughter has EDS? I once had a student in a summer program who had type
4...I was the resident medic. snipped

I've always wondered what happened to her....knowing her and working with
her really enlightened my life. I don't think she is still with us, which is
sad.

--riverman


Yes, type 4, the same as my daughter. It killed her mother. Type IV is
the deadliest form. Most don't live past their twenties. Its also very
rare in females as it is male dominant (only 1 in 10 are female).



Sorry, Frank. It's hell enough having kids with ordinary problems or
problems that can at least be watched and pretty much taken care of by
present day doctors.

Cyli
r.bc: vixen. Minnow goddess. Speaker to squirrels.
Often taunted by trout.

http://www.visi.com/~cyli


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